Tag Archives: NEDA

In Loving Memory of Matt Ryd, Musician & Eating Disorder Activist

Last year at the end of Eating Disorder Awareness Week, I stumbled on another guy named Matt, a musician from Chicago who also suffered from an eating disorder. He had made a really touching video for ED Awareness Week, and all proceeds from his music sales for the entire week were being donated to the National Eating Disorders Association.

MattRyd

I had a brief correspondence with him over email, mainly to tell him how much I loved the video he had made, and to ask him if he would ever consider coming to DC to do advocacy work with me and the Eating Disorders Coalition. I’m often one of the only guys there, but I know there are others. I’ve met them, we’ve networked online, and we’ve all seen the limited statistics that are available that still unequivocally demonstrate that an eating disorder is a serious, life-threatening illness, regardless of the sex or gender of the person suffering from it. We need more male representation on Capitol Hill to reflect the actual population affected, and I was excited to be in touch with such a passionate and caring guy like him.

Matt had told me he wasn’t sure he could afford traveling all the way to DC, but would like to in the future if possible. As I’ve been prepping for the Fall 2013 day in DC, he was on my short list of people to email and check in with. Instead, this evening I found that his family left the following comment on the post from last year:

Matt Ryd has passed away.

From his parents on his Facebook Page:

Message from Matt’s Parents to all Matt’s wonderful friends and supporters:

It is with very heavy hearts that we must tell you that Matt lost his battle with the anxiety, depression and eating disorder that had consumed him for so long and ended his physical life here on earth on Sunday, August 4th. While Matt fought vigorously for many years, his illnesses had grown more and more debilitating over the past 18 months or so, and though he tried hard not to show it, his daily suffering increased significantly and was ultimately more than he could bear. Our hearts are broken, but we take comfort in the knowledge that he has finally been “Healed” and will suffer no more.

Matt was an amazing young man with many talents, but most importantly he had a sensitive spirit and heart of gold and touched people’s lives all around him. In true Matt Ryd fashion, he left an open message for his friends, fans and others who supported his dream of being a musician that he asked us to share with all of you. His message reads as follows:

********************************************************************
“To all the people who have taken time to listen to my music and support my dream, even though it stops here before I become a big shot and get to prove that I won’t lose touch with my frans: Thank you. Thank you for the joy that you brought into my life. Because there have been absolutely no times that I have been happier than when I’ve been onstage, than when I’ve watched comments roll in on YouTube videos, or when I’ve had simple Facebook conversations with people halfway around the world. You are all wonderful and amazing and I thank you so so much for your time and your attention. I’m just happy that I’ve been able to make any impact in your lives. I truly regret that the music has to stop along with me.”

********************************************************************
Matt lived to write and play music and was always overwhelmed and humbled by the tremendous support that he received from so many of you. Thank you to all of you for being a part of his life and providing him with such unbridled joy in the midst of all of his struggles. He will be missed greatly by us all, but we think his passion for music will continue on – in the words and lyrics of the other wonderfully talented singer/songwriters that play nightly across the Chicago landscape and beyond – and we know that is what he would want.

There will be a memorial service in a few weeks to celebrate Matt’s life and the music he loved so dearly in a way that he would have wanted. More information will be posted as it is determined. Matt also very humbly requested that any remembrances be made to either ANAD (www.anad.org) or NEDA (www.neda.org) which are two eating disorder support organizations that were important part of Matt’s life for many years.

Thank you again for the part that each of you played in Matt’s life. We will always cherish the happy moments and memories that being a musician provided for Matt over the years.

Steve and Joani Ryd

Right now I can’t even read through the entire message because I’m crying too hard. I want to watch the video again that he made last year, but the moment the music comes on I know I can’t.

On March 5, 2013, he shared the following message on his Facebook page:

Hey everyone,

As National Eating Disorder Awareness Week has drawn to its close, and having finished an overwhelmingly successful fundraiser (for which I owe you all of the credit), I feel like the time is right to make an announcement.

I’m going back into residential treatment for my own eating disorder for a while. Actually, I’ve been in residential for the past week, but didn’t want to distract from the fundraiser until it was complete.

Some of you are probably thinking: “Wait a second… wasn’t he *just* in residential treatment?” Well… yes and no. Yes, I left residential treatment about 5 months ago when my insurance ran out. 5 months is a relatively short amount of time, but can also be an eternity when you’re left with unresolved issues. In my case, as the eating disorder symptoms stopped being a problem, that led to intense anxiety. That anxiety, in turn, led to a pretty bad bout of depression. And that depression led me to turn back to my eating disorder.

In technical terms, I relapsed. It’s not uncommon. Statistics vary, but it’s generally believed that somewhere around 50% of patients tend to relapse in their first year after spending time at an inpatient/residential facility. Unfortunately, though I tried very hard not to fall under this statistic, as I’ve said before: eating disorders are sneaky little bastards, and they can come creeping in and take over your life before you even know it is happening.

I have no clue how long this stay will be. I do know that, this time, I’m staying here until I’ve worked through the underlying issues that lead me to turn to my disorder. Last time, I essentially cured the symptoms without fixing the disease. Or, to get all metaphorical on you, I tore up the weeds in the garden without managing to dig up the roots, and, as is expected, the weeds grew back.

In the meantime, I’ll obviously be taking a hiatus from music and production while in the recovery process. But I’ll also be taking a sabbatical from social networks (Facebook, Twitter, my blog… and I’ll try really really hard not to Instagram the pictures my parents send me of my cat). I’ll do my best to respond to personal messages on any of those platforms, but I won’t be responding to or making any wall posts, @ replies, or anything like that.

But I’m not dropping off the face of the earth. If you’d like to reach me for any reason, I’ll still be checking and doing my best to respond to emails at matt@mattryd.com. If you have my personal cell phone number, I’ll be doing my best to respond to any texts that I get, and if you don’t have my personal cell, you can text my work phone at (773) 980-6793. I do have to emphasize that I will *try* (and will try very very hard) to respond to everything. But, just to put things in perspective, I have *very* little free time, so I apologize in advance if some communication falls through the cracks. I promise, I will read everything, and that emails and texts from the outside world are greatly appreciated, as I’m a little bit sequestered at the moment.

Let me just say thank you to you all for your support and for sticking by me during my struggles. I promise that, when the time is right and when I am healthy, I will be back, and will be better than ever. I’ll be putting out albums left and right, producing like crazy, hanging out with as many of you as possible… and best of all, I’ll be doing it without an eating disorder. If you thought that I was able to do cool stuff before, just wait until you see me when I’m healthy. I plan to be a force to be reckoned with.

I love you all dearly, and will miss you while I’m gone, but I know that this is for the best. And when it’s all done, you’ll have an even better Matt than you’ve ever had before. And hopefully that’s something for us all to look forward to.

Your friend,
Matt

Even though we never met, I felt a connection to Matt. I think it was his sincerity and honesty, even while he was struggling. I could just tell that his candidness and hopefulness were going to give others hope, too, and maybe the impetus to seek their own recovery and support.

So if you’re reading this and you’re struggling, or you know someone who is: it’s time to do something about it. Eating disorders are serious, deadly illnesses, and you (and me, and Matt, and everyone) deserve to be healthy and happy.

Here’s the video that Matt made again. Please watch it, and share this with anyone who needs to hear it.

I wish I could have met you. Rest in peace, Matt.

6 Comments

Filed under Activism

Anorexia in Men on the Rise – Huffington Post Live Interview

Happy Eating Disorder Awareness Week! I had the pleasure of participating in a discussion on Huffington Post Live on eating disorders in men this past Thursday. I’m excited that they chose to highlight this subject during awareness week, and appreciate the thoughtful questions they had for everyone on the segment.

You can watch the full segment below, which includes a young man named Alberto De Leon in Chicago who is currently in recovery from an eating disorder; Margaret Johnson, the editor for HuffPost Women; Amanda Webster, an Australian mother who’s son developed anorexia in childhood; and Dr. Gregory Jantz, an eating disorder specialist in Seattle. You can watch the full video below:

You may notice that the title on the video says, “Manorexia on the Rise.” Well, I don’t care for that term one bit, and I’m happy to report that when I emailed my contact on the production team, they changed it on the main video page and wherever else it was possible. Unfortunately, it’s much harder to edit out of the video stream, but I want to extend my gratitude for the quick response they had in changing it where they could.

I’ve written about my disdain for that term in the past:

If you’ve been keeping up with me on here, you have probably heard me talk about “gender inclusivity.” I believe for ED treatment, research, and prevention to advance, it has to be fully inclusive and not just catered to the majority. I almost slipped through the cracks of the resources available to me during my own recovery because it was all designed for women, and I mourn for other boys and men who find themselves in similar circumstances.

I grimaced at the original title because taking a word like “anorexia” and altering it to reference EDs in men carries the implication that men experience it differently in some way – otherwise, they would just call it anorexia, right? …In short, it by default is not gender inclusive.

It won’t do us any good to take notice of how our recovery culture is feminized if we just turn around and make it gendered in the opposite direction. Eating disorders are, more than anything, a matter of public health concern.

Thanks again to Huffington Post Live for having me, and for responding to my request regarding the segment title so quickly. If more media outlets handled this issue with the same level of care, we’d all be the better for it.

Like this post? Stay up to date by ‘Liking’ my blog on Facebook, following me on Twitter or Tumblr, subscribe via email, or just leave me a comment to let me know what you think!

Leave a comment

Filed under Activism, Eating Disorder Awareness Week, eating disorders, Interview, Recovery, Uncategorized

Public Perception of Eating Disorders – Huffington Post Live

In case you missed it last night, I had a last-minute invitation by the Huffington Post to join a discussion on the public perception of eating disorders! Also featured in the video are Claire Glass, a blogger who recently shared a story about her grandmtother’s life-long eating disorder, and two treatment professionals, Kim Dennis and Laura Discipio.

You can watch below:

Claire’s story is particularly moving and important, since, along with people “like me” who don’t fit the stereotypical perception of who can have an eating disorder, elderly people are often underrepresented or invisible in the conversation. You can read the full write-up about her grandmother here.

Special thanks to Jenny Churchill and everyone at Huffington Post Live for handling this subject so seriously and taking the time to talk about it! Responsible journalism is incredibly important when talking about eating disorders, because it’s already such a sensitive subject that it can be easy to make sensationalist stories which have shock value but lack substance. Both for this segment and another article I was interviewed for last year, they have an excellent track record!

PS – I’m on Google+ now. I don’t quite get it yet, but don’t let that stop you from adding me to your circles or squares.

Like this post? Stay up to date by ‘Liking’ my blog on Facebook, following me on Twitter or Tumblr, subscribe via email, or just leave me a comment to let me know what you think!

2 Comments

Filed under Interview

Review: Miss Representation

I finally got to see Miss Representation last night, courtesy of a local event for National Eating Disorders Awareness Week. Released in late 2011, it’s a film exploring the role of women in our society and what we can do to change the disparities that exist.

It’s easy to hear about such a film and say, “But so much progress has been made!” While this is true, and yes, progress continue to be made, it’s slowed down more than you think. I’m not always one to tout statistics, but some of the figures they’ve researched are quite startling. For example:

  • The average teenager consumes roughly 10 hours, 45 minutes of media per day, between television, movies, the internet, and music, the majority of which is TV watching.
  • Of that media consumed, women own less than 6% of TV stations and roughly 6% of radio stations. The board members of the biggest media companies (such as Viacom, Time Warner, etc) systematically outnumber women by more than 2-1, so most of the media being produced and approved is from rich men.
  • Women make up 51% of our population at present, but are only 17% of Congress (even I was surprised by how low that number is).

Mad yet? You should be.

Continue reading

Leave a comment

Filed under Activism, Eating Disorder Awareness Week, Review

Eyes Open, Mouth Closed

Way back in 2004, I made a big decision. I got out of class one night and drove from the city back to my parents’ house with the intention of telling them I had an eating disorder. It was rather spontaneous, although it had been in the back of my mind for months. Having had inconsistent luck with friends when seeking support, I wanted to try and avoid those same pitfalls when speaking with my family.

I had found an article on a website that seemed perfect – it was something I wished I could make everyone read before they tried to talk about eating disorders. I printed it out and stuck it in my backpack, where it stayed for weeks, just in case I needed it. When I finally got home, I handed the print-out to my mother and asked her to read it and to not say anything until she had.

Continue reading

3 Comments

Filed under Eating Disorder Awareness Week

Reasons For Recovery Blog Series – Part 8

I’m collaborating with some other writers in a blog series for the entire month of February. The theme is simple enough: reasons to recover. Special shout-out to Anne-Sophie over at Fighting Anorexia for starting the conversation that turned into this little project and for doing most of the organizing.

Today’s post comes from writer Benjamin David in the UK (another male contributor – awesome!) Ben writes:

Nothing beautiful has ever been achieved except by those who dared believe that something inside of them was paramount to individual circumstance. This illness can plague, tarnish and jade the emotional faculty and instils within sufferers a ubiquitous obsession, infatuation and anxiety that can tarnish almost every element of one’s being. I have spent numerous, mundane hours pensively exploring my mind, recognising my tendencies, frailties and strengths and recognising that despite all the perceived “benefits”…. I wanted freedom. I wanted to be able to have the freedom to make an impartial action, to take an impartial, rational stance. I wanted to be able to sit down without that lingering impulse that is symptomatic of an eating disorder. Tranquillity, peace and serenity cannot be induced with a oscillating and unyielding eating disorder… The road of recovery is a journey of self-discovery. We recognise our values, qualities, desires, strengths and weaknesses. We advance within ourselves, we question the pressures that the inane mass media invoke on us, we question those comments from others about our appearance and we ask ourselves why we deserve freedom. The most striking question that we ask is what it means to be happy and what founds the most impassioned, long lasting and healthy form of happiness?

You can read the full post here.

I really like the inquisitive nature of Ben’s post, because everyone’s experience is going to be different. Before you find the right answers, you must first ask the right questions, and I think we will all have a different question & answer even if we all arrive at the same conclusions. This speaks to the deeply personal nature of recovery – although there is certainly a universality in the experience of an eating disorder (just read the whole blog series from this month, we’ve all hit many of the same themes!), the path that each of us take to recovery is as unique as the individual.

Others can push you along, encourage you, and point you in the right direction, but no one can walk it but you – day by day, meal by meal, one foot in front of the other.

Like this post? Stay up to date by ‘Liking’ my blog on Facebook, following me on Twitter or Tumblr, subscribe via email, or just leave me a comment to let me know what you think! 

Leave a comment

Filed under Eating Disorder Awareness Week

NEDA 2012 Winter Lobby Day – Richmond, VA 1/18/12

Did you know that, at present, there are no procedures implemented on the state or federal level to screen for eating disorders among adolescents?

The most recent data provided by the National Eating Disorders Association (NEDA) shows that in American high schools, 30% of girls and 16% of boys suffer from disordered eating, which includes bingeing, vomiting, fasting, abuse of laxatives and diet pills, and compulsive exercise.

It gets worse.

Females between the ages of 15-24 suffering from anorexia have a mortality rate twelve times higher than that of their peers, a statistic that translates into anorexia having the highest mortality rate of any mental illness. Unfortunately, even though eating disorders are preventable and effective treatment exists, they are on the rise.

Continue reading

1 Comment

Filed under Activism

Virginia Lobby Day with the National Eating Disorders Association

Just a quick post to let everyone know that the National Eating Disorders Association will be hosting it’s second state-level Lobby Day with the VA General Assembly on Wednesday, January 18. If you’re a Virginia resident, please consider attending.

Last year, we met with members of the General Assembly and were instrumental in educating them about the importance of a bill being introduced by Senator Puller to study eating disorder prevalence in VA. As a result of the advocacy and lobby work, the bill passed unanimously! You can read the follow-up with a link to the study results here.

Myself (2nd to left) with other advocates and Senator Puller in 2011.

There’s still work to do, though. Even if you can’t attend, you can write or call your state representatives and ask them to support NEDA’s work. We know for a fact that phone calls and emails were also influential in some representatives considering this cause. You can find the full press release here complete with contact info to RSVP. It’s free, it’s easy, and it’s an opportunity to make a difference for everyone effected by eating disorders in Virginia.

Leave a comment

Filed under Activism